Seizures steal so much, that we hate to give them anything out of fear.
We do not stay in the house waiting for the next seizure.
We do not want the fear to win like a terrorist.
But we have to ask ourselves, “Should we go?”, before certain outings.
Swimming? Stay within inches of her. She must wear her snug life-jacket.
Parties? Let her sit in a sturdy chair with armrests. Stay cool and hydrated.
Outside? Stay in the grass. Take breaks when red in the face.
Restaurant? Booth please. No Red 40 in food. No alcohol…
Camping? Route to nearest hospital mapped out. Pack emergency medications and first aid kit.
We go where we want, but there are plans and modifications to be made.
We always have the “Seizure Bag” with supplies, towels, small blankets, extra clothes, wipes and bandages.
DO NOT JUST STAY HOME.
Do not let a three minute seizure have the other twenty three hours and fifty seven minutes of the day, out of fear.
None of you will get any day back. Push the limits. Others will try to limit you.
Rose had seizures in pools, at parties, in a tent camping, riding a bike, on the beach, eating in restaurants, shopping in stores, at Brownies, at Bible School, even in a funeral home line and in the parking lot after her college graduation.
Handle it calmly and quietly for those three minutes. Then pause to recover and continue. EMS if needed. They do not have to transport.
Afterward we all have a rest in a quiet place or in the car. Then return to the activity if possible.
Do not stop your life and wait. This is the only life you have.
Do not let the seizures seize it. Live it bravely. Live it big. Get out there.
Should we go…?