There is a cost for the journey through a child’s chronic condition.
A toll is taken not just from the child, but also from those who care for her/him.
We all know about the financial costs and the toll on time.
But there are other concessions; imbalances in relationships, loss of trust, outlooks are tarnished, joy is stolen.
What is left after the battle looks nothing like your expectations of future, family and friends.
Maybe the battle is over for us. Maybe the hole in Rose’s heart was the cause of the seizures. Maybe the epilepsy is gone as I always dreamed.
The cost of this journey was steep. We are worrisome, skittish and weary. We all need to heal, not just Rose.
This is my warning to you, Other Mother. Do not lose yourself saving your child.
Mama
Seizure Mama and Rose 