We moved Rose back to the university yesterday.
She did all the packing. We just helped load and unload the truck.
Just before we left, as an afterthought, her dad suggested I check the medication drawer.
I did it just to make sure a bottle of medicine had not been inadvertently left behind.
What I found instead made my heart stop.
She had forgotten her fob.
Her necklace with all her epilepsy information and a fob with emergency pills in it.
This is her lifeline.
(I had to pause while typing this and take a deep breath.)
I took the box with the necklace, tag and fob in it to where she was
and held it out for her to see it.
I told her “If you have a seizure and no one knows what to do you could die.”
She nodded and looked down guiltily. Her response was “I did die.”
“Yes,” I replied “but I saved you. I will not be there next time.”
She has had her helicopter mama all summer. Maybe she just forgot where it was?
Maybe she wants to believe epilepsy has left her.
It is a nice dream.
But she must be prepared for the next seizure, even if there never is one.
This epilepsy belongs to Rose now.
I hope she will not forget the fob again.
Seizure Mama = standing down.
Hugs and prayers for you all and for Rose to never need that FOB. God is watching by over her. Love ya. Alice
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Thanks friend
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So sad – makes me cry. It is very hard for me to deal with the illness of the young. I find myself questioning why God lets the young innocent child suffer so much. My granddaughter who started college carries her epipen – she has a life threatening peanut allergy. It is hard to let them leave home when you know you will not be there to protect them. I will be praying for your daughter and asking him to protect her.
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Rose is the strongest person I know, because of epilepsy. Her three majors are integrated health sciences, emergency and disaster management, and international studies. She will be saving the world. Do not be sad.
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Good for Rosie – I know you are very proud of her. She is an outstanding person.
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