Rose had seizures everywhere. On these many occasions, I plastered a smile on my face and looked folks in the eye as they glanced down and walked by. What’s so unusual about a grown woman sitting on the floor/ground beside an unconscious little girl?
Rose had a particularly dramatic series in an undisclosed, public location. As I was sitting on the floor in a hallway, a woman with healthy children walked by, patted me on the shoulder and said “Be brave” and walked away.
I am on the floor. My child is unconscious, again. Be brave? Do you tell a person with cancer to be brave? Do you pat the shoulder of someone being wheeled in to open-heart surgery and whisper “Be brave.” to the patient?
What choice do we have? Seizures disrupted ballgames, picnics, award ceremonies, bible school, birthday parties and dinners in restaurants.
I am tired of being brave. How about sitting on the floor with me? Wait with me down here on the floor. Anchored to this spot until it’s over. Until Rose comes back to me.
Stay and help us up.If you really care, don’t walk away leaving us to be brave down here alone and afraid.
Seizure Mama Speaks to parents:
Seizures may show up wherever you go. Please do not stay at home wondering and waiting. Other people cannot understand what you are going through if you do not tell them. Most folks truly want to help, but do not know what to say or do. Do not waste your emotional energy getting mad at others because of this. I do not know what to say to my grieving friends. I am always afraid of saying the wrong thing. But what does my silence say? Be brave!
Then and Now will be posted on Wednesday: June 9 2021
This story always brings back a lot of emotions. I am STILL tired of being brave.