This will be a summer of help and healing for Rose. She will continue Physical Therapy and Grief Counseling. She is also continuing to tweak her seizure medications.
Drugs transitions must be done carefully, one change at a time. The rate of change depends on the drug’s half-life. A longer half-life means slower changes.
Drug K can go down one dose per week. Drug O must go slowly because of its long lingering. Drug X reacts with Drug O, so there is a careful dance between the two.
This transition will take months to complete. There will be pauses to avoid surprises.
Rose will be in the wedding of her friend from pre-school. This is the friend whose parents rushed to the hospital to help Rose during her stroke and then drove to another hospital to stay with her until we arrived. These folks talked Seizure Mama down off the crazy cliff that night. They are family forever.
Rose will walk down the aisle and then sit down. This is so everyone can relax, especially Rose. She trusts neither her body nor her brain. We hope she will gain more confidence as time passes and she gets stronger.
There will be another pause as we take Rose on her graduation celebration vacation. This was postponed due to her heart surgery to fix the PFO(hole) that probably caused the stroke.
So off we go to celebrate our survival. Her brother is joining us. It will be a dream. We will relish every moment.
When we return home there will be more transitions and more therapy. When this healing is complete we hope Rose will be ready to start her career.
Look out world!
MAMA
Seizure Mama and Rose 