Every SEIZURE MAMA post I have written so far has been about the past.
This one, however, is occurring in “real time.”
I wanted to share a tiny part of our twenty-four-year journey with you,
so you could get a sense of our anticipation and anxiousness.
(I DO NOT WANT FEEDBACK ON THIS. You are an observer only.)
Rose has been on this particular drug for twenty-one years now.
It has been her friend and her enemy.
When all other combinations failed, she went back up on this one.
It helped with the seizures, but there were costs.
Everything slowed. It was sort of like changing water to molasses.
Why now? She is working and driving.
Her grades were good for her first semester away from home EVER.
Good is the enemy of great. Things are good, but the struggles are still here.
Think of it as always having to walk uphill…never on level ground…never downhill.
So STARTING TOMORROW, we will be peeling off this friend/foe drug.
It will not be coming back for various reasons.
If there is a seizure, one of her other drugs will be increased.
It is a tiny dose, not even in therapeutic range.
But it has been her security blanket medication.
Rose’s brain has had this molecule for twenty-one years of her life.
She is scared and excited. She needs this.
Damn she is brave!