Echo Whistling

When Rose was deep in the throes of epilepsy, she had to be monitored constantly.

At first, this required calling her name for a “What?” or stopping whatever I was doing to go look at her.

Then we developed the game, Echo Whistling.

Every few minutes, I would whistle two random notes,

then she would echo the same notes back.

I only called her name when I wanted her attention.

The check in took a fraction of a second and we both went on with what we were doing.

When there was no response from her, there would be seconds of panic until I could get to her and look at her. She was usually busily playing.

We “echo whistled” for years, it was a habit for us both.

Sometimes I would hear her whistle in her sleep.

I wonder if I did too?

Seizure Mama

 

 

Author: Flower Roberts

I am a garden blogger and a mother. This blog is about my daughter Rose and her triumph over epilepsy. We are in the process of completing a book, Watching Rose Rise. We need folks who understand life with seizures to give us some feedback. Rose is off at college right now so I, Flower, am running the blog PLEASE come and join us. We want to get this right.

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