If fevers caused the seizures, then all we had to do was stop the fevers.
So we watched diligently for the flushed face. Felt the forehead.
At the slightest hint of a high temp, we pulled out the ear thermometer.
If Rose had a fever, she got liquid product to bring the fever down,
These were usually red or pink. Did they contain RED 40 dye?
Were we actually causing what we thought was a febrile seizure by giving her medication with Red 40 in it?
We didn’t learn that Red 40 was one of her triggers until two decades later.
I can’t beat myself up over something no one knew at the time.
There were twelve febrile seizures before the big one that changed everything.
SEIZURE MAMA
Seizure Mama and Rose 