Fear of Fevers

This is the post excerpt.

If fevers caused the seizures, then all we had to do was stop the fevers.

So we watched diligently for the flushed face. Felt the forehead.

At the slightest hint of a high temp, we pulled out the ear thermometer.

If Rose had a fever, she got liquid product to bring the fever down,

These were usually red or pink.  Did they contain RED 40 dye?

Were we actually causing what we thought was a febrile seizure by giving her medication with Red 40 in it?

We didn’t learn that Red 40 was one of her triggers until two decades later.

I can’t beat myself up over something no one knew at the time.

There were twelve febrile seizures before the big one that changed everything.

SEIZURE MAMA

 

Author: Flower Roberts

I am a garden blogger and a mother. This blog is about my daughter Rose and her triumph over epilepsy. We are in the process of completing a book, Watching Rose Rise. We need folks who understand life with seizures to give us some feedback. Rose is off at college right now so I, Flower, am running the blog PLEASE come and join us. We want to get this right.

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