Author: Flower Roberts

I am a garden blogger and a mother. This blog is about my daughter Rose and her triumph over epilepsy. We are in the process of completing a book, Watching Rose Rise. We need folks who understand life with seizures to give us some feedback. Rose is off at college right now so I, Flower, am running the blog PLEASE come and join us. We want to get this right.

Would You Read It?

If I wrote a book about Rose and me,

would you read it?

If I wrote about her sorrows and her joys,

would you read it?

If I told stories about her falling down and rising up,

would you read it?

If I shared secrets of her resilience and strength,

would you read it?

If I let you in on how we survived epilepsy, the enemy, for twenty years,

would you read that?

If I divulge our tricks and secrets,

would you read it with relish?

If YOU need this book,

then I will write it for YOU,

because we are on the other side of epilepsy.

Since you are still struggling,

I will look back at our journey and share our stories.

Seizure Mama

 

Fear of Fevers

This is the post excerpt.

If fevers caused the seizures, then all we had to do was stop the fevers.

So we watched diligently for the flushed face. Felt the forehead.

At the slightest hint of a high temp, we pulled out the ear thermometer.

If Rose had a fever, she got liquid product to bring the fever down,

These were usually red or pink.  Did they contain RED 40 dye?

Were we actually causing what we thought was a febrile seizure by giving her medication with Red 40 in it?

We didn’t learn that Red 40 was one of her triggers until two decades later.

I can’t beat myself up over something no one knew at the time.

There were twelve febrile seizures before the big one that changed everything.

SEIZURE MAMA