One Change at a Time

We are continuing to transition down on Xcopri, which is Rose’s latest medication failure. She reached a level toxic to her.

Another change we are making is to spread out her dosage of Keppra ER from once per day to twice. She has done the Keppra change while we wait for the new Xcopri pills to get processed at the pharmacy.

We did not expect the spreading out of the same dosage to cause symptoms, but she has felt off for several days.

This proves the wisdom of the rule, only one change at a time. If we had changed two drugs at once, we would not be sure of the cause of her symptoms. We may have blamed her malaise on the Xcopri change.
It’s best to be careful and scientific with all changes in medication.

Rose continues to be seizure-free and has more energy. This is great since we have trips and visits planned in the coming weeks.

As we all travel and socialize over the holidays, I would like to advise scheduled  periodic rest breaks, double checking times and doses of medications and NO red dye in foods.
We have had epilepsy as part of our Christmases for 30 years now. Better to be safe than sorry.

Happy Holidays

Seizure Mama