Rose will go down on Xcopri and add Onfi back in with Keppra.
Yes folks, this seems backwards, but anywhere is better than where she is now, lethargic, shaky and confused.
She moves from bed to couch to bed.
Today, we both lay on my bed and listened to the Wicked soundtrack.
We had to delay this latest change… again…due to generic drug instead of brand name Onfi.
What’s a few days out of 32 years.
We play the long game…Rose and I.
I will let you know how it goes.
I never wanted to blog her story in real-time, but here we are.
Seizure Mama and Rose
