We went up on Xcopri. Now, Rose’s legs give out. She fell up some steps last week. She has no energy.
Messages through the portal have been answered by the devoted nurse. Nothing is working. We now have both seizures and side effects. Rose cannot be left alone.
We have requested to return to EMU…again to titrate down more quickly and move on to a new drug. She also needs an at-home sleep study.
I just cannot be upbeat anymore. She graduated from college in December 2022 and has not been stable and energetic enough to look for work.
Too bad Rose can’t work for Miss Kitty at the Long Branch Saloon..That is where she spends her afternoons.
Seizure Mama as Debbie Downer
Seizure Mama and Rose 