It is a very hard call for a mama of a child with a condition like epilepsy
to know when to stay close on standby
or back off and stand down.
The mother instinct is strong,
but I did not want a weak child.
It’s been hard to watch the knocks.
It’s been hard to let her fall.
We stand down almost all the time now. How, you ask?
We let her fall years ago. She got back up.
Her seizures were never hidden. So there was no secret to protect.
She is so resilient. That is what makes her able to be independent.
Seizures seized enough minutes of her childhood.
They should not be entitled to the rest of her time.