Standby or Stand Down?

It is a very hard call for a mama of a child with a condition like epilepsy

to know when to stay close on standby

or back off and stand down.

The mother instinct is strong,

but I did not want a weak child.

It’s been hard to watch the knocks.

It’s been hard to let her fall.

We stand down almost all the time now.  How, you ask?

We let her fall years ago. She got back up.

Her seizures were never hidden. So there was no secret to protect.

She is so resilient.  That is what makes her able to be independent.

Seizures seized enough minutes of her childhood.

They should not be entitled to the rest of her time.

Seizure Mama

 

Author: Flower Roberts

I am a garden blogger and a mother. This blog is about my daughter Rose and her triumph over epilepsy. We are in the process of completing a book, Watching Rose Rise. We need folks who understand life with seizures to give us some feedback. Rose is off at college right now so I, Flower, am running the blog PLEASE come and join us. We want to get this right.

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