I have finished the book about Rose and me.
I have put all our stories down with the lessons we learned
while trying to balance a mean disease with a good life.
Now my goal is to find others who understand what it is like
to sort through the drugs and side effects to find the best mix.
Those who strive to live a happy, healthy life between seizures.
I am pleased to find strong, brave and optimistic survivors
not only carrying on but sharing their stories in real time.
You are everywhere.
Young folks like Kevin( Kevinskick) in Ireland, Laura ( Shake It Off; Living with Seizures), Alec (Seize and Destroy) and Yaelle ( Epilepsy at 23) in Israel are sharing their struggles.
Parents such as Clare of E-word and Dave of Epilepsy Dad are telling how they help their children.
Then there are the parents who send comments like Lee Ann and Khadija that keep me going when I want to quit.
ALL of you inspire me to be stronger, braver and better.
We are a community. Brought together by a relentless disease.
You make me proud.